The ALS Association led the advocacy effort behind The Chris Larkin Act, working alongside legislative champion Rep. Ryan Guillen and advocates across the state to push for this life-changing ...

A coalition of ALS patients and caregivers is petitioning the FDA to review available data on the stem cell therapy NurOwn ...

The Walk to Defeat ALS is the ALS Association’s signature event, with funds raised directly supporting innovative research, care services, and advocacy efforts.

In the last year, the FDA has approved two new drugs for ALS, after a nearly 20-year drought of new options. The approvals followed intense lobbying by advocacy groups ...

Patient advocacy is often visible during FDA advisory committee meetings. The agency usually allows an hour, sometimes more, for members of the public to express support or concerns about the ...

LOS ANGELES, May 6, 2025 /PRNewswire/ -- May is ALS Awareness Month, and the ALS Network is committed to raising awareness and understanding of the devastating disease that has no known cure. This ...

Buffalo Sabres Hall of Famer Danny Gare is joining Buffalo’s Walk to Defeat ALS. On August 3, The ALS Foundation is hosting a walk to support Western New Yorkers living with ALS. The event takes place ...

McAndrew, who has been serving as the Hampshire HOPE coordinator with the DHHS since July 18, 2022, brings experience and commitment to the field of harm reduction and substance misuse efforts.

Barkan was diagnosed with ALS in 2016 and "chose to use the time he had left fighting to create a country where health care is treated as a human right." 24/7 Live San Francisco East Bay South Bay ...